Saturday, December 11, 2010

updates

Guest writer: Mommy

We have a lot of catching up to do. But first I will start with Michelle was able to go home last Friday, December 3. She had her surgery November 29 to help open her airway so that we can start working with her on using her speaking valve.  Her hospital stay was a roller coaster ride. Never quite sure what the plan was, or what was going to happen next. Healthy one day, sick again the next. And it didn't help that Daddy was having to do double duty since I am out of commission. Luckily we had some major help from Tino and Grandma during her stay that allowed Daddy to stay sane. Thus, Daddy made all the right choices and now our little girl is benefiting from all his work. Michelle now has a new feeding tube that bypasses her stomach and goes straight into her small intestine. She is doing fabulous with it and gaining weight again much quicker than we have ever seen. There were several other technical tests that they did while she was in the hospital that gave us reassurance that she will continue doing well.  And of course, our spunky little Michelle is now doing Marvelous!

Now for those wondering, I am still in the hospital, but that is a good thing. Why? Because it means I am still pregnant. I was hoping to go home on bedrest November 29, but after my doctor did some tests he decided that these two little boys might be in more of a hurry to get here than we thought and it was better to leave me on IV medication in the hospital. Roller coaster ride here too. Not quite sure what is going to happen and when, but things are looking good and the boys are still cooking so we will sit in this lovely bed and wait very patiently. Right now our goal is to keep going one day at a time, but if you ask me my long term goal, I am optimistically holding out for 36 weeks. Hey, I loved the movie Pollyanna when I was a kid, what can I say.

Now before our little family got blown out of our lovely little nest and then had a pile of manure dropped on us, we were doing what any family was doing. And so I want to share some of the pictures of what we were doing the day before our little world went topsy turvy.

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First sled ride of the year!

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  Sure looks like fun.

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The Abominable Snow Ryker

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Uh oh, snow ball fight

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Watch out Mommy, I am going to get you

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Or maybe Daddy will

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The beginnings of their Snow Man

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Looking so proud of his work

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Michelle staying warm with Grandma inside

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But Ryker proudly displaying his work after enduring the cold weather.

Now I must undertake the job of going through all the pictures my wonderful family have been taking while I am away that chronicle all their wild adventures.

Gingerbread House

Guest Writer: Mommy

Now that absolutely amazing sister-in-law of mine, who is working very hard so that this Christmas season isn't full of hum-bug for my family, brought us a Gingerbread House making kit.

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Getting everything set up on Mommy's bedside table.

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Michelle using her new scissor talent to cut some cardboard for the Gingerbread Tree.

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It takes all of us to do a major project like this.

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Helping Grandma with the frosting.

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Like I said, serious teamwork here.

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Michelle hard at work paying close attention to the detail. And what is Ryker doing?

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That's right, testing out the sweetness.

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Okay, he will help out again too.

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Love this sweet little face.

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Hm . . . wonder where she picked up that trait?

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Now to the adding candy (sampling candy) step.

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Like we said, it is the details that matter.

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The most amazing Gingerbread House ever. And let me tell you that even though some of the candies continually go missing each time I get a certain little visitor, everyone else who comes to visit tells me how this is one amazing little house. Thanks to my most amazing sister-in-law for this perfect little Christmas Family activity.

Tuesday, December 7, 2010

Growing Up and Moving Forward

Guest Writer: Mommy

My sweet little lovies are growing up changing so much in the short time I am not with them. A major milestone for any child is being able to use scissors, but Michelle has not quite mastered that skill. Her Occupational Therapist had given us some hints right before I ended up in this lovely bed, and Michelle has been so excited to try it out. Well, her fabulous Nurse went and got her some new scissors to try while Michelle was in the hospital and now that she is home, boy has she found a new talent.

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There she is figuring out the mechanics of scissors. But what do you do with all this fancy cutting?

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Why create some fancy, crafty Christmas ornaments of course.

Sunday, December 5, 2010

Spread a Little Christmas Cheer

Guest Writer: Mommy

Now I know this absolutely amazing woman. And lucky for me, my husband has a twin with fabulous taste and he convinced her to be his wife. Lucky for me, because now she is my sister-in-law. Now she spent last Christmas in the hospital with her newborn son in the NICU and her other son in  another state spending Christmas with her parents and siblings. She knows that holidays in a hospital are not fun. SO, being the amazing woman she is, she brought Christmas to me in my little hospital room.

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Setting up my little Christmas Tree.

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My first present of the year, Christmas socks! (Please do not stare at my blood shot eyes, my lack of make up, or the fact that I haven't done my hair in over week.)

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Ryker and his favorite cousin looking at the wall art and discussing the most appropriate place to display it.

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Now there is special trick she taught us all, to make the tree the most spectacular, put both colored and white lights on. The white lights brighten the tree, but the colored light add flare. It is truly stunning.

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The munchkins decorating the tree.

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Rockefeller Center, step aside. Now this is a Christmas Tree!

Saturday, December 4, 2010

A Splediferous Christmas

Guest Writer: Mommy

So this morning was full of important assignments. Make our house Christmasy, and go get the all important Christmas Tree.

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Good job Daddy!

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Who doesn't love bubble wrap? And when there are so many fancy decorations, there is bubble wrap galore.

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Not sure Daddy would know what to do if he didn't have his amazing little side kick there to help him out all the time.

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And of course, beautiful sparkly lights. Nothing makes a tree quite as fancy as those beautiful lights.

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And enjoying the finished project. So many memories, and so many more to make!

I'm a Big Boy Now

Guest Writer:

So now that I am stuck at the hospital and can't stop my sweet little lovies from growing up, they are taking advantage this opportunity.

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That is right folks, my once baby is now my big boy. No more crib for him, he took care of that himself. He is all about his big boy bed now.

Friday, December 3, 2010

Have a Holly Jolly Christmas

Guest Writer: Mommy

When Michelle was getting ready to go home, I gave her some special instructions: Make the house feel like Christmas! Now, if any of you truly know Michelle know that she is an extremely obedient little girl. So she immediately went home and got Ryker on the same page and they convinced Daddy that they needed Christmas.

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Who can refuse sweet little smiles like these? Daddy sure can't!

So out came the boxes and living room cleaned up so that tomorrow they can go get the tree and make our house Christmas ready!

Thursday, November 25, 2010

To Give Thanks

Guest Writer: Mommy

To start off my ramblings I will tell a story. One I must have heard as a very young child and I will assume it was my farm grown grandmother who told me, mainly because  the version I remember uses some colorful language I will censure for this post.

There once was a little bird who during an unexpected early snowstorm was blown from the warmth and shelter of her nest. She immediately cried out for help, for she knew she needed protection from the storm or else she would freeze. Now a sweet little but also very wise cow, out in the storm too, heard the poor bird's cry and knew she could do something for the bird that would give warmth and protection. The sweet little cow walked over and dropped a load of "manure" on top of the bird. Immediately the bird cried out, "How dare you! I am freezing, blown from my wonderful nest, and you drop a load of 'manure' on top of me." Continuing her rampage she went on, "I wanted warmth and protection and you give me stinky, smelly, disgusting, and down right obscene 'manure' instead." The sweet little, but very wise cow, took the insults and said, "Do what you may with my gift," and walked away. The bird, not realizing the warmth she was now feeling and the protection she was receiving from the storm wriggled and fought her way out of the pile of "manure." Now, something the little bird did not realize was the "manure" gave more than just protection from the storm. Along came a hungry and tired wolf, and the wolf seeing the little bird decided to make her its supper. Moral of this story, had the bird accepted the gift the cow had given she would have been protected and kept warm during the storm, and the stench of that pile of "manure" would have kept the wolf at bay.

Funny little story, I know. And to be honest, I do not remember the details to why I was told this story. But none the less, I have remembered it all these years. And this Thanksgiving in particular it keeps coming to mind.

Our little family has many things to be thankful for. First and foremost we have each other. There is the wonderful rock solid Daddy of our family, I make a decent Mommy, two amazing and miraculous little people, and two more miracles getting ready to join us. We live in a beautiful little home that is overflowing with love and sweet memories. And out extended family and friends that  no matter how crazy and wild our adventures get, they still hang around. But recently, and I mean starting this Tuesday, we have realized that there is so much we need to be grateful for.

Our own little tale began last Monday when I went into one of my scheduled OB appointments to look at Babies and Mommy. We were good, but my doctor told me I should probably try to take it easy the next little while, stay off my feet more and rest. Well, those two little amazing miracles I talked about earlier, are also a  wild handful. And with Thanksgiving coming up I decided to call Grandma and see if she would come and help out so that I could rest, yet still make it possible to do all the Thanksgiving celebrations. Soon after, I took Michelle to see her Ear Nose Throat doctor and opened my big fat mouth and told her some of my concerns about Michelle's trach tube. Well, she did some assessing in the office that she would not usually of have done and low and behold we were signing ourselves up for another surgery. Then Saturday came around and Ryker came down with a cold, where he got it is a mystery since we have been working hard to stay in isolation this last month. But luckily Grandma had come the night before and we were able to get a handle on it. Then Monday, Michelle started gagging, coughing, and sneezing. Well, any other child I would have said, "It is viral, wait 7 days." But with little Michelle, things are a bit different. We immediately started pedialyte and Daddy ended up staying up most of the night suctioning her with that constant cough.

Now we get to Tuesday. I started the day off with calling our Pediatrician to make an appointment for both munchkins so that we could avoid any emergencies on Thanksgiving and be all squared away for the holiday weekend, I was pretty sure Ryker was already on the mend and Michelle was only beginning to get sick but we have learned to not underestimate these two. I then hurried got ready for the day and went to my own doctor's appointment to check on the babies and me to make sure we would be safe for the holidays ourselves. Well, the appointment went like this, ultrasound showed happy healthy little boys who want to join our amazing adventures a little too soon, doctor then says to go home on bedrest. . .  or why not just go to the hospital instead and start on IV medication since we don't want emergencies this week. Not what we had anticipated at all, but decided it was probably the best plan. So Daddy brings me over here gets me to my room, makes sure everything is settled in and then rushes home to take the munchkins to their aapointment. Little did we know that Michelle was slowing getting worse at home. When Daddy got them to their appointment, we were reassured that Ryker was already on the mend, but Michelle was not. And this time, she was going to have to go to the hospital and get her aggressive treatments there. So Daddy now had to take another loved one to the hospital in just a matter of hours. And our wonderful pediatrician stated, to avoid anymore hospitalizations Ryker was to not come to the hospital at all. He needed to get healthy and stay that way. And so Thanksgiving day is spent in two different hospital rooms and at home. Separated, and not quite as we imagined.

Now one might look at all this and say, "Wow that is a pile of 'manure' that just dropped on your family like a bombshell. That really STINKS!" And yes, that is probably true. But as that story above taught me early on, sometimes I need to not focus on the unpleasant circumstances I am in, but sit back and see what blessing are truly around me.

  1. We have each other, and no amounts of hospital floors, or miles from home will ever change that.
  2. Grandma was already here to bail us out in an very unforeseen emergency. (Had she not already been she could not have come to our rescue for the winter storms have descended and are preventing Holiday travel this part of the country.)
  3. We have amazing family and friends who pray and jump to our aid everyt ime we have another adventure. Honestly, we never feel alone.
  4. We are blessed to live some place that has the skilled and knowledgeable Doctors and facilities that can care for our family. Even though we might not all be home together, we are not in different cities or even different hospitals, and that is truly a blessing.
  5. And then there are obviously the blessings that we don't even know about, the hungry tired wolves out in the forest who are avoiding the stench of the manure and staying at bay.

We are grateful this Thanksgiving season! Even though things are not perfect and we are not sitting around our kitchen table carving a beautiful turkey and eating a delicious meal together using the nice china, silver, and crystal set aside for such occasions. (Those of you who know my true domestic skills know, that probably wouldn't have happened anyway.) We  still know that we have lots of thanks to give this day.

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From our family to yours:

Happy Thanksgiving!!!

Monday, November 15, 2010

Wrestlemania - Our Way

Today marks the 100 day mark until our baby brothers' due date. So to celebrate we went in to the Doctor's office to see what they were up to.

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Can't figure it out? Baby B is sitting on on Baby A's head. Yep, that is what they do all day in Mommy's tummy, wrestlemania. It is going to be really interesting to see how this all turns out once they are born.

Saturday, November 13, 2010

Another one bites the dust

Since every else has been seeing doctors and having procedures, tests, and surgeries, I decided to join the fun. So a few months ago I talked Mommy and Daddy into letting me have a turn seeing the doctor. The doctor, understanding my plight, told Mommy and Daddy I would need a surgery. He told them I have a hydrocele and that it would most likely lead to a  hernia down the road. They were scared, but as for myself, I was excited to finally get to join the crowd.

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Here I am in the surgical waiting area, so nice of them to have a little kids play area.

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Then, they took me back to pre-op to go through their checklist of questions. That didn't take long, so off to the playroom in pre-op.

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And play I did.

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Then I found this baby on a gurney and I prepped her for surgery. I of course was great at transporting her too. I ran over every bump and hit at least three walls, while moving at ludicrous speed.

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Daddy found these awesome shake and go cars and we had races down the hallway. It was awesome!

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Next I got to try on some pretty cool OR gear. People were starting to get confused and wondering if I was a doctor, so I had to take it off.

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Daddy wanted to be cool like me. He tried it on too.

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Then after waiting in the hospital for 6 and half hours they told us the doctor was ready for me. There is one probably with parents who work in the healthcare system and a sister who has met every specialist under the sun, they get to know who is the best. Well, the best is also well known in the area and when there are emergencies that come, it is the best that takes care of them. So after the amazing surgeon took care of some pretty important emergencies, I got my turn.

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And there is the team taking me back. Yep, they let Daddy take me back.

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And before we all knew it, the Surgeon was out in the waiting room talking to Mommy and Daddy and pretty soon they were sitting next to me in recovery.

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And a few minutes later the fabulous recovery nurse got me a glass of water, oh the first drink in 8 hours, and then a very delicious  popsicle. I am starting to wondering why everyone seems to think surgery is so bad. All I remember is a bunch of playing for hours in some place away from home, Daddy taking a day off work, and waking up to have someone give me as many popsicles as I want. Seriously, all I see is plusses.

And today, I am running around and playing like normal. Yep, I will definitely chalk this up as not so bad.

Thursday, November 4, 2010

24 weeks and counting

Today our babies are 24 weeks old. And today we were able to go on and see the babies again. Here are some videos of our growing boys.

What can we say, we think they are rather handsome already!