Monday, September 19, 2011

A long day

Guest writer: Mommy

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Today was long. It started at 5:00am and went on forever. We met with the Cardiology team here, had electrocardiogram, and an echocardiogram. We then met with the Anesthesiologist who discussed what they are going to do to prevent any problems during some more studies they will do this week that will require sedation. Next was a trip to Radiology where we met another Fabulous Rad Tech. Michelle was incredibly tough and did an esophagram and then an upper GI study. Now Michelle is totally fed through her Gastric Tube, we have been going to a feeding therapist for two years to help her learn how to swallow. We told her if she would practice her swallow then we wouldn’t have to put a tube down her nose into her throat. You know what . . . she DID IT!!! She swallowed practically an ounce of barium during the procedure.  In fact the Tech made Michelle a Certificate of Bravery.

So in essence. Lots of stuff done, but no answers, yet.

We are all having a hard time as a family being separated. But we are so thankful for all the love and support everyone is giving us.

2 comments:

Jana said...

I'm glad that day is over with for you. Way to go on the swallowing!! Michelle has once again proved she can do anything she decides to. Tell her we think she's awesome.

Elizabeth & Matthew said...

That is so great! My sister already told me this story and still, I almost cried as I read it. Michelle truly is Marvelous!